CF Awareness Month
Supporting people living with cystic fibrosis
Every member of the CF community lives their own unique experience of cystic fibrosis, from parents navigating a diagnosis of their newborn, to those not able to access or benefit from newer treatments, and people who've had a transplant.
A lot has happened over the last 12 months and while significant progress has been made, we’re reminded daily that the challenges of navigating CF can be cruel, and they haven’t gone away.
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to be kind
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Kindness
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breathe
the ballet
In a world where kindness can lead to extraordinary journeys, Medhi Angot, a talented dancer and choreographer, created a moving ballet production called “Breathe” over a decade ago.
The purpose of this ballet was to raise funds and awareness for his dear friend who battled cystic fibrosis.
With a deep sense of purpose and connection to CF, ten years later, Medhi brought together a circle of friends and artists to create another beautiful moving tribute to people living with CF.
The ballet video "BREATHE" captures the struggles, hope, and dreams of those living with CF. It honours all those who live with courage and determination and remembers those who have lost their fight to CF.
This isn’t just a ballet video, it is a movement; that the enduring power of art, compassion, and the belief that together, we can create change and make a profound difference in the lives of those facing unimaginable challenges.
chocky fish love affair
From tees to a stylish tea towel adorned with hand drawn Chocky Fish designs to scooping up a whole box to share, our collection is sure to delight. Embrace the joy of Chocky Fish and spread the love with every purchase, knowing that you're not just enjoying a tasty treat – you're also supporting our mission to make the world a sweeter, kinder place for people living with cystic fibrosis.
Indulge in the irresistible charm of a Kiwi icon, the Chocky Fish. Dive into a world of sweetness as you explore our range of Chocky Fish merch, each item crafted with care and adorned with the playful charm of our iconic fish-shaped treat.
Our son will have his own story, this is his cross to bear, but in young, blissful ignorance we carry the weight for now, and if I could forever, I would."
Mum of a child with CF
“CF causes so much destruction and devastation for people affected by it, it is never ending, physically consuming, and soul destroying. While Trikafta is a massive step forward for our CF community, we must wrap our support around families as they continue their tumultuous journey.”
Parent of young adult with CF
The unpredictability of CF means that things can change very quickly and I’ve had to learn to enjoy life’s little moments when things are going well to make up for the times that are more challenging.
Adult with CF
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deliberate acts
of kindness day
Get ready to mark your calendars because Friday, May 31st, 2024, isn't just any ordinary day—it's Deliberate Acts of Kindness Day!
This is an opportunity to ignite a chain reaction of kindness, creating a ripple as you do something kind for others. Let's join forces, unleash our compassion, and make a world of difference—one deliberate act of kindness at a time.
What will you do on Deliberate Acts of Kindness Day?
DONATE NOW
SHOP WITH PURPOSE
PURCHASE CHOCKY FISH
FUNDRAISE WITH CHOCKY FISH
CREATE YOUR OWN FUNDRAISER
this is us
Cystic Fibrosis NZ was set up in 1968 by a group of parents responding to an unmet need when their babies were diagnosed with cystic fibrosis. Today, CFNZ empowers 600 people living with, their families/whānau to have quality of life by giving them access to practical, physical, and emotional support that eases the burden of the condition. Our vision is that all people with CF in New Zealand are thriving and living healthy lives.
Newly diagnosed support for parents
Family support for whole of life
Welfare assistance to ease financial pressure
Social Workers who provide advice and guidance to navigate CF
Support with physical activity grants to enable lung health
Help during hospital admissions to ease the stress and burden
Support and kindness during end of life
Equipment to enable quality of life
Tools to support children with anxiety
Mental health & wellbeing support
Support with transplant assistance
Education tools and resources
